As I write this, Jan is within 2 weeks of finishing her course of treatment for oro-pharyngeal cancer. That is, she has one more dose of chemotherapy scheduled for March 4th, and she has 10 more doses of radiation, having completed 25 of 35.
It is a cause for hope and celebration! And yet, like so many very hard things, it is hardest near the end. You see, her radiation has been focused in her neck, tongue, throat and larynx. Consequently, she has developed ‘the gag reflex from hell.’ Everything that touches the back of her throat makes her gag, and sets up a cycle of vomiting. This includes the secretions that are part and parcel of the radiation.
Therefore, over the past two weeks, she may have had 2000 Calories of nutrition. She has received multiple doses of IV fluid. We now have a suction machine at home, to help with her secretions. And as of Tuesday past, she has a PEG tube (a feeding tube that goes through her abdomen into her stomach).
Alas, she has eaten so little for so long that things in the tube often make her nauseated and start the cycle of vomiting all over. Today I am giving her IV Phenergan at home for nausea. We have used not only Phenergan, but Zofran, Reglan, Scopolamine patches and Ativan to control nausea. The gag goes on despite all of it.
It is a dark night in her life; a kind of last storm of her spiritual winter. For all of the family, it is terrifying. Our home increasingly has the air of a hospital. Syringes, vials, tubing all lie about, and we are now going to try a tube-feeding pump.
She is exhausted. She is so weary of vomiting. Her tongue is ulcerated, and the vomiting only hurts more. She wonders how long two weeks can last. And since she always joked that time is merely made up by humans, it would seem that two weeks might seem almost like forever.
We know that her prognosis is very good. We know that soon, the radiation and the chemotherapy will be behind. But between here and there is a chasm, a gulf. The idea is so lovely, the reality seems so distant. T.S. Eliot said, ‘Between the idea and the reality falls the shadow.’ The shadows are long at the end of this winter.
So I come to you to say thank you for your love, your kind words, your prayers and wishes. They are precious to us. And I come to you to ask that you continue them, and specifically that you pray for the last two weeks to be free of any further nausea, vomiting or misery.
She has endured, and I know there is more to endure. But I hope that with all our prayers and love, her suffering can be less, and her hope greater, through the power of God the Father, God the Son and God the Holy Spirit.
After all, the Word says, ‘ 14 This is the confidence we have in approaching God: that if we ask anything according to his will, he hears us. 15 And if we know that he hears us—whatever we ask—we know that we have what we asked of him.’ I John 5: 14-15.
Please, continue to ask for my dear wife. We want her to be back to her life, whole, healed and vibrant.  It will not be the same; it will be like rebirth, a kind of foretaste of resurrection.
“I’m living with the image that cancer left with me. I know the fears cancer has made me see. I am more than what cancer had made me be. And I will live my life totally cancer free. Cancer is a hard battle no one should have to fight. Tossing and turning throughout the whole night. Trying so hard to reach toward the light. Sometimes wanting to just give up the fight. But we all must hang in there and be very strong. The battle will end soon it won’t take too long. You will overcome cancer because you are… Read more »
Marsha
12 years ago
Dear Lord,please spare Jan of any more nausea/vomiting and let her body absorb the nutrition it needs. Please let this difficult time be a distant memory.
I am a friend of Lisa Lehmann, and want to encourage you and Jan. I have Stage 4 leiomyosarcoma, an incurable but “manageable” (with surgery primarily) cancer of smooth muscle. My primary site was my jaw and it metasticized to the lymph nodes, so I had my 4th surgery of the year in September. I finished 35 rounds of neck radiation on January 3, 2011, and there is nothing I can say but “It was hell.” Fortunately for me, at about the 25th treatment, it reached its worst. And nearly as soon as I finished the treatments, I started to… Read more »
Jan and you and your kids have been weighing a lot on my heart this week, and I want you to know that I am praying for you all. I am so sorry to hear all that Jan has gone through. Love and prayers are being sent your way.
I know that both you and Jan have to be longing for next Friday. And though I have prayed that she would be spared any more suffering this week, I know the reality that exists with chemo and radiation treatment. I will be praying for you every day for the next week.
Wow, Ed, you’re a constant source of edification. Even in a dark, dark situation you manage to be a constant fount of faith. Thanks, my brother — you’re being an amazing encouragement to those of us with less strength than you.
Hello there. I discovered your web site by means of Google even as looking for a related topic, your web site got here up. It appears good. I have bookmarked it in my google bookmarks to visit later.
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It truly is deemed an seriously sensible demonstration that offers excellent examples in the way to engage males and women inside performing here could be the plan. I located this kind of extremely topical. Accomplished nicely along with several thanks.
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“I’m living with the image that cancer left with me. I know the fears cancer has made me see. I am more than what cancer had made me be. And I will live my life totally cancer free. Cancer is a hard battle no one should have to fight. Tossing and turning throughout the whole night. Trying so hard to reach toward the light. Sometimes wanting to just give up the fight. But we all must hang in there and be very strong. The battle will end soon it won’t take too long. You will overcome cancer because you are… Read more »
Dear Lord,please spare Jan of any more nausea/vomiting and let her body absorb the nutrition it needs. Please let this difficult time be a distant memory.
I am a friend of Lisa Lehmann, and want to encourage you and Jan. I have Stage 4 leiomyosarcoma, an incurable but “manageable” (with surgery primarily) cancer of smooth muscle. My primary site was my jaw and it metasticized to the lymph nodes, so I had my 4th surgery of the year in September. I finished 35 rounds of neck radiation on January 3, 2011, and there is nothing I can say but “It was hell.” Fortunately for me, at about the 25th treatment, it reached its worst. And nearly as soon as I finished the treatments, I started to… Read more »
Jan and you and your kids have been weighing a lot on my heart this week, and I want you to know that I am praying for you all. I am so sorry to hear all that Jan has gone through. Love and prayers are being sent your way.
I hope and pray your wife will get better soon.
God bless!
No words are enough. Our prayers together are more powerful. We all pray God will give Jan comfort as she nears the end or her treatments.
God bless you all!
I know that both you and Jan have to be longing for next Friday. And though I have prayed that she would be spared any more suffering this week, I know the reality that exists with chemo and radiation treatment. I will be praying for you every day for the next week.
Wow, Ed, you’re a constant source of edification. Even in a dark, dark situation you manage to be a constant fount of faith. Thanks, my brother — you’re being an amazing encouragement to those of us with less strength than you.
And, obviously, our love and prayers for Jan.
Hello there. I discovered your web site by means of Google even as looking for a related topic, your web site got here up. It appears good. I have bookmarked it in my google bookmarks to visit later.
You’ll be able to find certainly an awesome deal of particulars like this to think about. What a fantastic examine raise up. My partner and i offer feelings more than for the reason that popular motivation nevertheless evidently you may discover inquiries just like the 1 an individual mention in which one of the most essential thing will probably be operating in trustworthy excellent trust. Far more than likely that the career might be evidently defined as a great sport.
It truly is deemed an seriously sensible demonstration that offers excellent examples in the way to engage males and women inside performing here could be the plan. I located this kind of extremely topical. Accomplished nicely along with several thanks.