So, here’s a funny story. I wrote this column one month ago for the Baptist Courier. A few days ago, while sending a column (with a very similar title) to the Greenville News, I accidentally sent this one. Therefore, this column is in today’s Greenville News and will be in the January issue of the Baptist Courier. Oopsie!
My apologies to both editors and all readers. I hope you find the column meaningful, wherever you happen to read it!
Whether they are young or old, we do not want our loved ones to die. Period. Even if we live with faith in our eventual, eternal reunion with them, we know that their passage will leave a void. I completely understand.
But I want to take a few lines to try and make things clearer, or easier, for those who have family members who are very aged and infirm. You see, I am privileged to care for many seniors in the emergency department where I work. And a large number of those I see come from nursing homes. Furthermore, many have severe illnesses that have left them debilitated, such as profound dementia, life-changing strokes or heart failure, cancer, kidney disease and various physical ailments.
Very often, when they become acutely worse, they are sent to hospital emergency rooms. Sometimes, this is due to the concern of family members. Other times it is due to the policies of the facility where they reside. But all too often, the trip to the ER and the evaluation there is uncomfortable and frightening for those patients in the final phases of life. And the expectations that come with those experiences are unrealistic.
It isn’t that they cannot, or shouldn’t, be treated. It’s easy enough to give fluids to the dehydrated, to treat the pneumonia or urinary tract infection. But what I want everyone to think about, when their elderly loved one is sent to the ER, are these things: 1) What do I want to have done? 2) What outcome do I hope to see in my family member? 3) What am I willing to put that person through? And 4) what would they realistically want if they could say?
For example, when the sweet, 95-year-old lady with dementia has a heart attack, will her family want her taken to the cardiac catheterization lab for a procedure? Even if they say yes, the cardiologist will likely say no, due to the level of risk involved. She may or may not survive the event, but the procedure may be just as bad. And if the 85-year-old, bed-ridden gentleman with multiple strokes falls, and hits his head and has a hemorrhage in his brain, will the family expect him to have a craniotomy (open brain surgery) for the injury? Will there be a net improvement in his life, or an extension of his years? Will the darling great-aunt with heart failure and pneumonia survive the month on a ventilator? And would she want it?
Please understand that I’m not advocating ‘mercy killing’ or anything as nefarious, or un-Christian as that. I want everyone to have as much time, and as much quality of life, as possible. But we need to be merciful and realistic. And even those working in nursing home facilities need to be practical. A nurse once told me that she wanted an elderly patient taken to the ER for pneumonia, against her family’s wishes. I asked her, ‘how do you want to die?’ Her answer was telling: ‘why, of old age, of course!’
We don’t really get to die of old age. We all die of something. But we can die with dignity and comfort. And our loved ones deserve a chance to die without unnecessary interventions born of unnecessary guilt or false-expectations.
Thanks for these words, Ed. The “merciful and realistic” approach you suggest is the one I am following with my nearly 98 year-old mom. It’s good to be supported in my approach with your words. Mom has emphysema and congestive heart failure, and spends each day in a small ‘apartment’ in an assisted living facility. She has been under Hospice care for several months, and understands that there is no cure for her illnesses. She has executed a Do Not Resuscitate order, and all of her custodial care and medical care providers understand that there will be no efforts to… Read more »
Diane Mann
11 years ago
I am a respiratory therapist and have the privilege of working in the same ER with Dr. Leap. This article is dead on, especially the part that no one dies of old age. And families need to be merciful to the elderly when they are no longer able to recognize their loved ones or care for themselves. Dying with dignity is a gift we all deserve! Dr. Leap is a great writer, physician and friend.
Well said. But it is difficult for those in the midst of the decision making process. It is hard to say, 95 year old Aunt Martha is having trouble breathing, maybe we should try to make her comfortable. The first focus is, “Wow, she has pneumonia, maybe she needs an antibiotic.” It’s not a keep her alive at all costs, but just a fix the immediate problem like we have always done approach. I have no doubt that you try to steer the conversation to the greater issue, but not all physicians are comfortable doing that. Some just have no… Read more »
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Thanks for these words, Ed. The “merciful and realistic” approach you suggest is the one I am following with my nearly 98 year-old mom. It’s good to be supported in my approach with your words. Mom has emphysema and congestive heart failure, and spends each day in a small ‘apartment’ in an assisted living facility. She has been under Hospice care for several months, and understands that there is no cure for her illnesses. She has executed a Do Not Resuscitate order, and all of her custodial care and medical care providers understand that there will be no efforts to… Read more »
I am a respiratory therapist and have the privilege of working in the same ER with Dr. Leap. This article is dead on, especially the part that no one dies of old age. And families need to be merciful to the elderly when they are no longer able to recognize their loved ones or care for themselves. Dying with dignity is a gift we all deserve! Dr. Leap is a great writer, physician and friend.
Well said. But it is difficult for those in the midst of the decision making process. It is hard to say, 95 year old Aunt Martha is having trouble breathing, maybe we should try to make her comfortable. The first focus is, “Wow, she has pneumonia, maybe she needs an antibiotic.” It’s not a keep her alive at all costs, but just a fix the immediate problem like we have always done approach. I have no doubt that you try to steer the conversation to the greater issue, but not all physicians are comfortable doing that. Some just have no… Read more »