Dear readers,

Many of you have wonderful connections  in the medical world.  Please read this and respond to the young lady, or to me,  if you have any suggestions.

And please lift her up in your prayers!

Edwin

From: Sarah Lindsey <sarah.lindsey.nc@gmail.com>
Date: Wed, 23 Mar 2011 20:51:11 -0400
To: Sarah Lindsey<sarah.lindsey.nc@gmail.com>; Sumit Gupta<sgupta@icrsaga.com>; <sumitandsarah@gmail.com>
Subject: An URGENT medical request – please read

Dear Family and Friends,

I am writing out of hope, faith, but also out of desperation. I need your help so please take the time to carefully read and immediately act on this email as time is certainly of the essence. As many of you are aware, I was diagnosed with a rare form of cancer, Adrenocortical Carcinoma (ACC), approximately 1 year ago in April 2010 at the age of 29. Sumit, my husband, and I, faithfully believe that the “right” doctor/person is out there that can help me; but we desperately need any and all help our family and friends could offer. Please circulate this letter to as many people as possible all over the world as I must quickly find this person. My life depends on it.

A brief history…

After my diagnosis, I immediately underwent a massive surgery at Duke Hospital in North Carolina (USA), where a 10cm tumor, my right adrenal gland, 20% of my liver, and 3 lymph nodes were removed. Post-operatively, my oncologist and surgeon advocated that I begin a type of oral chemotherapy known as Mitotane as a preventative measure for recurrence. This drug was known to help approximately 20% of Adrenal cancer (ACC) patients. After considerable research and prayer, my husband and I decided against the chemotherapy and turned our attention to multiple holistic treatments instead. We completely changed our lifestyle, eliminated all of the harmful toxins and foods that once were mainstays in our diet, and have added in a wide variety of cancer fighting foods, IV therapies, and mental and physical exercises in hopes of preserving and extending my life.

Despite our efforts, each scan since April 2010 has indicated new cancer growth in the lymph node region around the surgical resection, my liver, and lungs. In November 2010, I opted to try the Mitotane drug. Unfortunately, the tumor was not responsive, and I was removed from the drug in January 2011. I was next directed to a new clinical trial at Duke Hospital for the drug IGF-1 receptor antagonist OSI-906, which I began on March 16, 2011. There is a 33% chance that I am receiving a placebo instead of the actual treatment drug. I will never know. My next scan is scheduled for the week of April 27, 2011. Meanwhile, I’m in more and more pain every day and believe my tumors are continuing to rapidly grow.

While surgery remains the ONLY proven cure for those with ACC, my surgeon and doctors at Duke Hospital do not consider me to be a surgical candidate at this time due to the size and location of the tumor. They believe it is very vascular in nature and surgery could cause extensive internal bleeding.. However, my husband and I refuse to believe that surgery is not an option. There must be a surgeon in this world that can successfully perform this surgery. We need to find this person and immediately proceed with a surgical procedure that would remove all or most of this tumor from my body. At least that would give me more time and a fighting chance to eventually beat this cancer!

PLEASE quickly circulate this email to all doctors, or anyone you know that may be able to help us or at least guide us in the right direction. We are open to surgery, additional chemotherapy drugs that are more targeted to this cancer, or more holistic approaches. We know the answer is out there and need your help in finding it.

I can send additional information upon request, such as my latest CT scans, lab work, or any other information. The best way to contact us is via email at sumitandsarah@gmail.com.

THANKS!

Sincerely,

Sarah Lindsey Gupta

0 0 vote
Article Rating