I am sitting in our kitchen, writing my update as Jan plays Solitaire, and the kids distract themselves with television, music or games. We’re all a bit tired, because we just returned from a short trip to Myrtle Beach. After our difficult winter, Jan and I felt that the family needed some distraction. We are a family that travels whenever we can, and a trip was a kind of return to normalcy. Even though it was cold and windy on the coast, we had fun; as we always do when we’re together.
I haven’t written about Jan’s progress for a while. Many of you follow us on Facebook and you know that she’s doing well. In early March, she completed her chemotherapy and radiation therapy. It seemed as if the last dose of chemo was the worst, and the radiation effects grew more hideous over time. Although she was finished by March 8, she was miserable for the next two to three weeks. She was weak, and continued to have terrible oral secretions that impeded sleep. Her PEG (feeding) tube was a help, but became painful two weeks later and was removed. By that time, thankfully, she was taking more nutrition and fluids by mouth.
Still, we weren’t quite out of the valley. We just couldn’t see ‘the light at the end of the tunnel’ for some reason. We figured out what it was soon enough.
Because she felt so poorly, she spent a lot of time either in bed or in a recliner in our room. As a result, on March 30, she had severe weakness and shortness of breath. She could barely stand. I took her to the emergency department of our hospital where she was diagnosed with bilateral pulmonary emboli with a saddle embolus. (That is, she had blood clots in both main pulmonary arteries and in the bifurcation between the two.)
Her oxygen saturation was 77% on 100% oxygen. She was working to breath and her heart-rate was around 140 beats per minute. I had initially thought she was just anemic and dehydrated. My partner, David Heape, wisely pursued (and found) the pulmonary embolus.
In consultation with our oncologist and a specialist in Greenville, we were going to transfer her to have thrombolytics (clot-busters). But even better, we decided to give them in our own facility. As she received the tPA (tissue plasminogen activator), her oxygen saturation rose and her heart rate dropped in a beautiful, rapid and progressive manner. By the time she was in the ICU, her oxygen level was 96 % on 1 liter of nasal canula oxygen. Her echocardiogram was awfully close to normal, and showed no dilation of her right heart.
Needless to say, after all the struggles of cancer and cancer therapy, after all of the anxiety and fear, the pulmonary embolus threw me for a loop. But again, God was with us. Her recovery, mediated through the gift of aggressive, modern medicine, was nothing short of miraculous.
Over the next few days in the hospital and at home, she seemed to turn a corner. While hospitalized she received blood for a hemoglobin of 7.7, and she received two days of IV nutrition. She joked that maybe it took a PE to get her nutrition back to normal! Her skin tone
She has made steady progress. As all oral radiation patients experience, she now has a very dry mouth and very few taste-buds. But she eats, she drinks, she sleeps. She can lie flat and breath easily. She hasn’t been short of breath since her PE. She is still on blood thinner for a little bit of residual clot in her left thigh.
So you can see, a trip to the beach was a true God-send and a kind of mark that we are slowly, steadily climbing out of the terrible, dark valley of the shadow of death.
I’ll admit, the day of the PE, I thought I was losing her. It was all so surreal.  I thought I had been scared the day of her diagnosis. It was nothing by comparison. But I prayed and she prayed and so many prayed for her! Psalm 34:19 says, ‘Many adversities come to the one who is righteous, but the Lord delivers him from them all.’ I feel that I have seen that promise at work in our lives.
She is thriving and feels well.  She says to me, frequently, ‘I’m fine!’ Of course, I am still anxious. I want her to recover immediately, as unrealistic as I know that to be. I know that cancer, cancer therapy and a pulmonary embolus are major insults to even the strongest…like her.
Still, I focus on every symptom, every complaint (like her current sciatic nerve pain), every bit of discomfort for fear of further malignancy or some other lurking monster.
Fortunately, God is the God who overcomes monsters, and who knows what is around every corner. So I have to learn to give my fears over to Him. I have to stop pestering my wife with ‘are you OK?’ . I have to have faith that, as Julian of Norwich said, ‘All will be well, and all will be well and all manner of things will be well.’ Fear cannot by my idol, though Satan would have it be.
What can I say to you? Thank you for your prayers! If you have anything I can pray for, please tell me. Let me know how I can give back to you, who lifted us up for the past few months.
Thank you for your friendship and concern, and for asking others to pray.
Please know that your prayers have been ‘effectual.’ And the protected us from so much; even near tragedy.
I’ll continue to keep you posted. Please continue to pray for Jan and our family as she moves into the monitoring phase of her cancer treatment. And I hopefully move out of the anxiety phase.
I am so glad to hear of Jan’s progress.I know that you and the kids, and Jan have been on a roller coaster ride the past few months, but maybe this ride will soon be over , and you all can get back to normal. Will see you at church soon, and hopefully not in the ER with Casey and a busted elbow. By the way,Doc, Thank-you for the help and donation for the Relay for Life. Casey raised $400 for it , and she won the most Photogenic, in her age group. She had 12 oother girls completeing against… Read more »
lynne Abraham
13 years ago
Dear Ed, what an inspiration you are in your faith. Thank you for this gift shared through your writings and your witness. I am content with my situation which is O2 all the time, sats in the 70s walking to the bathroom without it, and having to use a wheelchair to navigate any BIG project such as Walmart.ha, ha but true..I have 31% lung function and 39% diffusion, BUT my doc who is the head of pulmonary and critical care medicine at MUSC will not transplant me until there is no alternative. The survival rate after 5 years is just… Read more »
Susan Copeland-Yates
13 years ago
I think the hardest part of dealing with sickness or death is getting past the feeling of waiting for the other shoe to drop. It’s difficult to remember how to just be happy without worrying about what else might happen.
This is really great news, and I’m so glad she’s feeling better now. My thoughts and prayers are with your family.
Jim
13 years ago
Sit down for a couple of hours each week , and let YourselF relax .
RKM
13 years ago
Ed we are glad Jan is feeling better and you had a chance to get away for a while. We hope your summer speeds into lazy evenings on the porch watching lightening bugs and your children.
Marsha
13 years ago
It is so wonderful to hear that she is better! God bless you!
I am so happy to hear of Jan’s progress. I’m praying now for a period of rest for your family. The anxiety takes a very long time to get beyond. Last Thursday marked seven years from the day that I was diagnosed and sometimes an ache or a pain can still freeze me with fear. But it does get better. There used to be a story on breastcancer.org called “The whale in the Room”. It likened cancer to a whale that that takes residence in your livingroom. At first it takes up the entire room and controls the remote controls… Read more »
What a great encouragement! I think the whale analogy is perfect! Right now, it’s no longer the size of a blue-whale, but about the size of a great white shark. Hopefully a really big catfish soon. God bless you for your kindness and prayer!
Ed Evans
13 years ago
Ed, God is great, God is good. Let us thank Him when we should! It was a joy to read that you guys got some beach time and return to normalcy. Today we leave for a few days at the beach, where I particularly enjoy and marvel at the never-changing landscape. No matter how we mess up the sand, it is wiped clean by morning. It reminds me of God’s grace, and while I’m there I will focus on all God has given me (and you) and be grateful for how he cleans up after us! I am so happy… Read more »
Thanks for the update, Ed. We missed you at the PRC, and hope to see you both of you there next time. Will continue to pray for you and your family!
Steve Brown
Larry Farmer
13 years ago
Ed & Jan,
Thanks for the update. We will continue to pray for Jan and your entire family. Last year at Relay for Life we walked sundown to sunup and got marathon distance in for my younger brother, who was diagnosed with Ca, treated and died in 2009. My younger sister was diagnosed, treated and survived gallbladder ca at the same exact time. This year we will be walking for your Jan, as well That will be 4 weeks from now.
Keep us informed, as you have many out here that care.
Thanks,
Ed and Jan, Susan and I understand from a personal cancer battle (Susan) and our prayers are with and for you – and our love, too. God has a wonderful umbrella over you, with a love we cannot fathom. All good things come from Him and He holds us gently in His strong hands. Bob
We absolutely love your blog and find the majority of your post’s to be what precisely I’m looking for. Do you offer guest writers to write content for you? I wouldn’t mind composing a post or elaborating on a lot of the subjects you write about here. Again, awesome blog!
I comment after i like a guide on a website or if I have something to add to your conversation. Usually it is really a result with the passion communicated in the article I browsed. And after this write-up Audi A6 3.0 TDI quattro Consumption and Costs | Cars Show. I was basically moved enough to publish a leave a responsea response I do have got a few of questions for you if it’s okay. Could it be just me or does it seem like like a few with the remarks glance as whenever they are written by brain dead… Read more »
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Have you ever considered creating an e-book or guest authoring on other websites? I have a blog based upon on the same topics you discuss and would really like to have you share some stories/information. I know my subscribers would enjoy your work. If you’re even remotely interested, feel free to send me an e-mail.
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Some tips i have observed in terms of pc memory is the fact there are specs such as SDRAM, DDR and so forth, that must go with the features of the mother board. If the pc’s motherboard is very current while there are no computer OS issues, changing the storage space literally takes under a couple of hours. It’s one of several easiest computer upgrade methods one can consider. Thanks for discussing your ideas.
{Thanks for a marvelous posting! I seriously enjoyed reading it, you may be a great author.I will be sure to bookmark your blog and will come back sometime soon. I want to encourage yourself to continue your great work, have a nice weekend!|My partner and I absolutely love your blog and find nearly all of your post’s to be precisely what I’m looking for. Would you offer guest writers to write content to suit your needs? I wouldn’t mind publishing a post or elaborating on a number of the subjects you write concerning here. Again, awesome blog!|My partner and I… Read more »
I also had trouble staring in safe mode. To do it, I pressed F2 (very quickly!!) as it was booting up and this gets you to a setup menu. On that, I turned off a feature called “fast boot.” Then I restarted again, and this time, it’s slow enough that I had time to press F8 and get the option to start in safe mode.
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Hello! I’ve been following your weblog for a long time now and finally got the bravery to go ahead and give you a shout out from Lubbock Tx! Just wanted to say keep up the excellent work!
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Have you ever considered writing an ebook or guest authoring on other blogs? I have a blog centered on the same ideas you discuss and would love to have you share some stories/information. I know my viewers would value your work. If you are even remotely interested, feel free to send me an email.
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I am so glad to hear of Jan’s progress.I know that you and the kids, and Jan have been on a roller coaster ride the past few months, but maybe this ride will soon be over , and you all can get back to normal. Will see you at church soon, and hopefully not in the ER with Casey and a busted elbow. By the way,Doc, Thank-you for the help and donation for the Relay for Life. Casey raised $400 for it , and she won the most Photogenic, in her age group. She had 12 oother girls completeing against… Read more »
Dear Ed, what an inspiration you are in your faith. Thank you for this gift shared through your writings and your witness. I am content with my situation which is O2 all the time, sats in the 70s walking to the bathroom without it, and having to use a wheelchair to navigate any BIG project such as Walmart.ha, ha but true..I have 31% lung function and 39% diffusion, BUT my doc who is the head of pulmonary and critical care medicine at MUSC will not transplant me until there is no alternative. The survival rate after 5 years is just… Read more »
I think the hardest part of dealing with sickness or death is getting past the feeling of waiting for the other shoe to drop. It’s difficult to remember how to just be happy without worrying about what else might happen.
This is really great news, and I’m so glad she’s feeling better now. My thoughts and prayers are with your family.
Sit down for a couple of hours each week , and let YourselF relax .
Ed we are glad Jan is feeling better and you had a chance to get away for a while. We hope your summer speeds into lazy evenings on the porch watching lightening bugs and your children.
It is so wonderful to hear that she is better! God bless you!
I am so happy to hear of Jan’s progress. I’m praying now for a period of rest for your family. The anxiety takes a very long time to get beyond. Last Thursday marked seven years from the day that I was diagnosed and sometimes an ache or a pain can still freeze me with fear. But it does get better. There used to be a story on breastcancer.org called “The whale in the Room”. It likened cancer to a whale that that takes residence in your livingroom. At first it takes up the entire room and controls the remote controls… Read more »
What a great encouragement! I think the whale analogy is perfect! Right now, it’s no longer the size of a blue-whale, but about the size of a great white shark. Hopefully a really big catfish soon. God bless you for your kindness and prayer!
Ed, God is great, God is good. Let us thank Him when we should! It was a joy to read that you guys got some beach time and return to normalcy. Today we leave for a few days at the beach, where I particularly enjoy and marvel at the never-changing landscape. No matter how we mess up the sand, it is wiped clean by morning. It reminds me of God’s grace, and while I’m there I will focus on all God has given me (and you) and be grateful for how he cleans up after us! I am so happy… Read more »
Thanks for the update, Ed. We missed you at the PRC, and hope to see you both of you there next time. Will continue to pray for you and your family!
Steve Brown
Ed & Jan,
Thanks for the update. We will continue to pray for Jan and your entire family. Last year at Relay for Life we walked sundown to sunup and got marathon distance in for my younger brother, who was diagnosed with Ca, treated and died in 2009. My younger sister was diagnosed, treated and survived gallbladder ca at the same exact time. This year we will be walking for your Jan, as well That will be 4 weeks from now.
Keep us informed, as you have many out here that care.
Thanks,
Ed and Jan, Susan and I understand from a personal cancer battle (Susan) and our prayers are with and for you – and our love, too. God has a wonderful umbrella over you, with a love we cannot fathom. All good things come from Him and He holds us gently in His strong hands. Bob
We absolutely love your blog and find the majority of your post’s to be what precisely I’m looking for. Do you offer guest writers to write content for you? I wouldn’t mind composing a post or elaborating on a lot of the subjects you write about here. Again, awesome blog!
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I comment after i like a guide on a website or if I have something to add to your conversation. Usually it is really a result with the passion communicated in the article I browsed. And after this write-up Audi A6 3.0 TDI quattro Consumption and Costs | Cars Show. I was basically moved enough to publish a leave a responsea response I do have got a few of questions for you if it’s okay. Could it be just me or does it seem like like a few with the remarks glance as whenever they are written by brain dead… Read more »
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Have you ever considered creating an e-book or guest authoring on other websites? I have a blog based upon on the same topics you discuss and would really like to have you share some stories/information. I know my subscribers would enjoy your work. If you’re even remotely interested, feel free to send me an e-mail.
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Some tips i have observed in terms of pc memory is the fact there are specs such as SDRAM, DDR and so forth, that must go with the features of the mother board. If the pc’s motherboard is very current while there are no computer OS issues, changing the storage space literally takes under a couple of hours. It’s one of several easiest computer upgrade methods one can consider. Thanks for discussing your ideas.
{Thanks for a marvelous posting! I seriously enjoyed reading it, you may be a great author.I will be sure to bookmark your blog and will come back sometime soon. I want to encourage yourself to continue your great work, have a nice weekend!|My partner and I absolutely love your blog and find nearly all of your post’s to be precisely what I’m looking for. Would you offer guest writers to write content to suit your needs? I wouldn’t mind publishing a post or elaborating on a number of the subjects you write concerning here. Again, awesome blog!|My partner and I… Read more »
I also had trouble staring in safe mode. To do it, I pressed F2 (very quickly!!) as it was booting up and this gets you to a setup menu. On that, I turned off a feature called “fast boot.” Then I restarted again, and this time, it’s slow enough that I had time to press F8 and get the option to start in safe mode.
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